test content
Logo
What is the Arc Client?
Install Arc
Howdy, Stranger!
ssbn655 Arc User
Reactions
Comments
-
True but with everything that has happened this year between starting my transition and Denise's illness and subsequent death my brain is just over taxed. It's a wonder I remember to put cloths on before going out of the house... LOL Men would swoon women would scream yada yada at the sight of a naked 62 year old trans…
-
Boy am I stupid... It was on a low level toon... Derp need more coffee!
-
I just can't seem to find them all I get is the old event thing. Shrug. Thanks Baddmoonrisin it's been very rough. I'm just starting to feel a little bit better. It may be that I got some fantastic news to offset the deep funk I have been in. I got my letter that recommends full SRS if I wish it! I meet with my plastic…
-
Final update: On Monday October 28, 2019 around 9:30 PM Central time my wife lost her war against her cancer. Denise was a unique person with a full speed ahead attitude. She was a RN for 35 years and an avid photographer with many showings. She traveled far and wide across the U.S. and ended up in New Hampshire where she…
-
Okay got the bundle opened the box got the shield and pet and supposedly the ribbon. Now where do you find it in the tailor nope not there under any uniform option. So where is it?
-
Thank you all even a few sparse words of kindness carry a lot of weight and meaning to me. Trust me they help more then you may think. I don't feel as alone reading and rereading them. They remind me that there is a world full of kind people out there beyond my immediate family in this very trying time in our lives. I find…
-
Oct 13 2019 Update on my wife's condition. My wife has had some difficulty healing form the surgery on Sept. 19th that removed 95% of her tumors so much so Chemo and radiation was impossible for her to tolerate. Part of her incision still has not healed. She has steadily weakened and is in constant pain. She is on some…
-
Thank you baddmoonrizin. That means more then you can possibly imagine. In regards to her now terminal cancer (no idea how much life the chemo will buy her but it's a finite amount what they could not get is inoperable and the type she has is extremely rare in adults so rare there is not a lot of data and what there is is…
-
This is one of the few places I can let things out with that being here and my therapist's office. My life is far more complicated then most and I don't really have the luxury of screaming out how I feel elsewhere. While at first glance it may not seem the right place it is actually. We are in a small way part of the Star…
-
Sept. 20 Today we had a conversation with her MD. When she had first told us of Denise's results we were very tired. So today we got clarification. My beloved wife has a limited amount of time left. The chemo can only slow the cancer at this time. As long as the chemo holds it in check she will live but at some point the…
-
UPDATE: Sept 19 Yesterday she had her surgery. She pulled through like a trooper. BUT they were not able to remove the entire tumor. They got 95% the other five would have required very extensive radical surgery that she may not have tolerated given her low hemoglobin count and other factors. So the Hail Mary kind of…
-
Oh man I was a radiation worker myself back in the day. I was in engineering division on a nuke boat plus we carried/may have carried 160 warheads on 16 Poseidon SLBM's. So many sub saliors of my era have cancers and other aliments far and above the norm. I am glad you are hanging tough and continue to be free of it.
-
Ok rant over and on to an update: Thursday the 12th. Denise went in for blood work and collapsed she fell out of the wheelchair. She was given IV fluids and pain meds and the blood work. She has a bacterial infection as the tumor has crimped her urethra off so she wasn't voiding all the way. Put on antibiotics. Monday the…
-
So politics please keep them off this I don't need to read about a pissing contest between the various parties over health care.
-
Thank you. I didn't start this to have it turn into political discourse. I started it as a means y to vent and unburden myself for a bit and get a little bit of encouragement in this dark time,
-
It is scary considering we are both retired. So this expense is a very big deal. It is not only costing us finance wise but my own well being in that I will never be able to get my much needed GRS as those funds have already been spent on her expenses thanks to the unnecessary delay by the paper pusher approving her…
-
Sept. 12th Update: Well good and bad news this time. Her insurance got approved so that helps a lot! Bad news they decided to only cover from August 1 on. Which means we are "only" 30 thousand in the hole. Good news she started chemo finally on Tuesday. Bad news her red cell count is really bad and it's going to get lower…
-
That would be great! Ginger beer by the way is off the table she hasn't touched a drop in well as long as I have known her. We have to watch her blood sugar levels and carb intake she is a type 2 diabetic. She got dealt a real bad hand. I really appreciate the good ideas they make this ordeal a little more bearable.…
-
Thank you we will give that a try. Found something that worked today by accident. I had some left over veggie pizza and had put a splash of siracchha on it, She asked for a slice and she actually found it tasted great/ She ended up eating two big slices the most she has eaten in three days.
-
Thank you baddmoonrizin. There are days I just want to scream at the top of my voice at everyone, others it's all I have to keep from breaking down and crying all day. Everyone here have been so supportive that when combined with my real life friends I don't feel alone in the wilderness so to speak. The real hard part is…
-
Update: August 31 2019 Good part Wife has had a portacath implanted this is a device that helps prevent damage to veins from chemo and also allows a faster rate of infusion of those meds. The bad part due to a stupid rule her chemo has been delayed by her medicaid insurance because we have 125 dollars OVER the allowable…
-
Update: After what seems like endless trips to the Cancer Center in Hays, Ks. the chemodrugs have been figured outat least in theory what they drugs are may change depending on some tests to see if she has a negative reaction to them. Today she gets her portacath implanted that is a device under the skin that makes it a…
-
Every day minute hour we have together is a treasure from now on. We don;t know where this path is going but we are on it to the end no matter where it goes. If nothing else this is a test for both of us. When we emerge from this forge we ll will be stronger and better then when we went in. Freya
-
We are taking it one day at a time. We spend a lot of time snuggled up together more then we have in a very long time. In a way it has actually brought us a lot closer. I will not lie I am terrified of losing her. If I had to describe how I feel I am screaming at the top of my voice trying to force back a Catagory 6…
-
Update on my wife's condition. I am not going to pull punches. It is not good. Mayo Clinic finally finished the DNA sequencing. She has an aggressive and rare in postmenopausal women soft tissue cancer called rhabdomyosarcoma. Denise is facing chemotherapy, radiation therapy and then surgery when the tumors shrink. If the…
-
It truly is the little things that make a huge difference. A kind word, a smile here, or a hug there. Everything seemed to hit at once in just the space of a few weeks and the little things like you said have gone a very long way at keeping the hounds of anguish somewhat at bay. Freya
-
Only the universe knows Coldnapalm, We are taking it one day at a time both with her health and everything else. How everything will resolve is a big unknown on so many fronts. The first thing that needs to be seen through is her health then everything else. I just hope she can do all the things we used to and that she…
-
Both our senses of humor have seen us both through many an ordeal. If we didn't laugh about the situations we have been in over the last 17 years we would have thrown the towel in long ago. In this situation we will get through it one way or another and what happens after who knows? Will she be healthy and able to do what…
-
Thanks to a very generous person who will remain nameless I have enough for the ship. This is an ordeal that I would not wish on my worst enemy. We hope to have word tomorrow on the biopsy results. But we are not holding our breath. We joked around that what has thrown it off is her human alien hybrid DNA. I may have said…
-
Update on wife. We are still waiting for Mayo Clinic to send the biopsy results. Talked to our oncologist today and she is hoping to have them on Monday she has no idea why they are taking so long. My wife and I joked around and said it was all the Alien DNA she has... LOL I will post from time to time updates. Thank you…