Hello everyone I 27 and was diagnosed with Multiple sclerosis about three weeks ago. I have not been playing a lot lately because it has recently moved to my hands. I have been dealing with it since last August, started in my feet and felt like they were asleep. Over time slowly moved up my left side and eventually my right side.
After the Super Bowl it started moving past my waist and it now feels like I am wearing a back brace 24 hours a day. I cannot feel my back and my ribs feel like they're coming in on me all the time. Anyways last Sunday it to my hands they now feel like they are sleep all the time. Just doing simple tasks are almost impossible.
Anyways enough about me the reason I am posting this is because I am a huge Star Trek fan, I love this community and cryptic. I would like to know if there are other Star Trek players that are around my age that has Multiple sclerosis. I'm trying to find people that I can connect with.
Don't get me wrong I have a wonderful wife, family and friends but I'd really like to find someone dealing with the same stuff I am. So if you have Multiple sclerosis or know someone that does and they play Star Trek online I would love to get in touch with.
Thank you
&
God Bless
Caden
P.S. sorry to be a big downer, but on a good note we just found out my wife is pregnant with our first child.
I can't imagine what getting that at such a young age is like. I'd like to think you can connect with most of us though. We'll try our best to make you forget you even have it.
I can't imagine what getting that at such a young age is like. I'd like to think you can connect with most of us though. We'll try our best to make you forget you even have it.
You rock.
Thank you so very much for your kind words, I feel very positive that I will get my hands back I'm going to one of the best MS doctors in my area next Friday. Good Lord willing he will help me get my hands back, because the rest of it I can deal with it's no easy task but nothing I can't handle. Losing my hands has probably affected me more than anything.
Right now the only reason I can even type posts is because of Dragon naturally speaking.
Sorry to hear that you have entered my demographic - a disabled gamer. Still there are resources out there to help.
Disclaimer - i do not work for or receive any compensation from the following:
Say2Play - A program that will allow you to program in common keyboard controls that are activated by voice command. Uses a mic for input. It is a one-time fee to buy it, but they have a free trial so you can see if it's for you.
AbleGamers - A site of, by and for gamers with various disabilities. Very friendly group, and they commonly review games and equipment that are friendly to the disabled gamer.
Anyways, I hope you can find these links useful. Good luck!
I am 34 and I have MS. (I was officially diagnosed last year, altho the neurologist said I most likely had the first symptoms when I was 4, and it grew progressively worse from there over the years.) After discussing treatment options with my Dr. He put me on 300mg of Lithium Carbonate once a day at bedtime. While it has not "cured" me, it has brought the progression to almost 0, and I don't have nearly as many attacks as I used to, nor do they last as long as they used to. It's a lot better than interferon shots or tysabri as far as the side effects are concerned. There have been studies on Lithium Carbonate with mice with MS, might be something you want to check out and discuss with your neurologist. While I haven't had as many attack types as you, I have had numbness and severe, I mean SEVERE pain in my left leg from ankle to hip (I have permanant weakness in my left leg as a result, so I have to walk with a cane), aphasia, "drunken" speech, and have been prone to falling, even out of my computer chair. However, there is hope, Richard Pryor had MS, and he lived to be 65. Neil Cavuto on Fox News Channel also has MS.
I wish you the best of luck good sir. Live long and prosper and keep in touch best you can. All I know is a community of Star Trek lovers has always been a great one to be a part of. We'll always have room and time to keep life more pleasent when discussing Trek.
Sorry to hear that you have entered my demographic - a disabled gamer. Still there are resources out there to help.
Disclaimer - i do not work for or receive any compensation from the following:
Say2Play - A program that will allow you to program in common keyboard controls that are activated by voice command. Uses a mic for input. It is a one-time fee to buy it, but they have a free trial so you can see if it's for you.
AbleGamers - A site of, by and for gamers with various disabilities. Very friendly group, and they commonly review games and equipment that are friendly to the disabled gamer.
Anyways, I hope you can find these links useful. Good luck!
DeWitt_LSF THANK you so very much for the great info because since the last time I post this my left hand has even got worse. So these programs may become necessity for me to play my favorite games.
I am 34 and I have MS. (I was officially diagnosed last year, altho the neurologist said I most likely had the first symptoms when I was 4, and it grew progressively worse from there over the years.) After discussing treatment options with my Dr. He put me on 300mg of Lithium Carbonate once a day at bedtime. While it has not "cured" me, it has brought the progression to almost 0, and I don't have nearly as many attacks as I used to, nor do they last as long as they used to. It's a lot better than interferon shots or tysabri as far as the side effects are concerned. There have been studies on Lithium Carbonate with mice with MS, might be something you want to check out and discuss with your neurologist. While I haven't had as many attack types as you, I have had numbness and severe, I mean SEVERE pain in my left leg from ankle to hip (I have permanant weakness in my left leg as a result, so I have to walk with a cane), aphasia, "drunken" speech, and have been prone to falling, even out of my computer chair. However, there is hope, Richard Pryor had MS, and he lived to be 65. Neil Cavuto on Fox News Channel also has MS.
raygor76 thank you so much for posting this is exactly what I was looking for. I was starting to get worried and thanks there was no STO players with MS, but I know there are probably many STO players with MS.
If it is okay with you I would like to add you to my friends list and maybe we can chat sometime online?
Anyways thank you again and I will look into those drugs were talking about.
Sympathy isn't going to help....but you have mine. My mother's friend has MS. It's a dirty rotten thing to have...sneaks up on you...and kicks your TRIBBLE like nothing else.
Don't EVER give up. Fight it with every fiber of your being. Don't let it dictate your life. Find ways to enjoy the things you are used to doing...like the options mentioned earlier about voice controls for your computer.
Talk with your wife...as much as you can. Also I highly recommend seeking out support groups....you'd be surprised what people with MS are doing....They are an inspiration....even to those of us without obnoxious medical conditions...hehe
Oh...and the baby thing...WOO...Kids rock. just don't expect to get much sleep.....
Comments
You rock.
I hope you find what you're looking for.
Thank you so very much for your kind words, I feel very positive that I will get my hands back I'm going to one of the best MS doctors in my area next Friday. Good Lord willing he will help me get my hands back, because the rest of it I can deal with it's no easy task but nothing I can't handle. Losing my hands has probably affected me more than anything.
Right now the only reason I can even type posts is because of Dragon naturally speaking.
Anyways thank you again your kind words...
Thank you very much and by the way your avatar is one of my favorite
Disclaimer - i do not work for or receive any compensation from the following:
Say2Play - A program that will allow you to program in common keyboard controls that are activated by voice command. Uses a mic for input. It is a one-time fee to buy it, but they have a free trial so you can see if it's for you.
AbleGamers - A site of, by and for gamers with various disabilities. Very friendly group, and they commonly review games and equipment that are friendly to the disabled gamer.
Anyways, I hope you can find these links useful. Good luck!
Also, I am very sorry to hear about your condition. I hope you are able to find what you are looking for. Godspeed, sir.
Live long and prosper.
I will ask her how she copes, if you like?
DeWitt_LSF THANK you so very much for the great info because since the last time I post this my left hand has even got worse. So these programs may become necessity for me to play my favorite games.
raygor76 thank you so much for posting this is exactly what I was looking for. I was starting to get worried and thanks there was no STO players with MS, but I know there are probably many STO players with MS.
If it is okay with you I would like to add you to my friends list and maybe we can chat sometime online?
Anyways thank you again and I will look into those drugs were talking about.
Roach yes please do I would love to be able to talk to her or at least get a little info...
Thank you so much Roach for posting!!!
Don't EVER give up. Fight it with every fiber of your being. Don't let it dictate your life. Find ways to enjoy the things you are used to doing...like the options mentioned earlier about voice controls for your computer.
Talk with your wife...as much as you can. Also I highly recommend seeking out support groups....you'd be surprised what people with MS are doing....They are an inspiration....even to those of us without obnoxious medical conditions...hehe
Oh...and the baby thing...WOO...Kids rock. just don't expect to get much sleep.....
As soon as she gets settled in her new dwellings and get her PC online, I'll ask her.:)